Tuesday, January 24, 2012

Chiari Malformation (kee-AHR-ee mal-for-MAY-shun)

Who in the world decided not to pronounce this word correctly was just wanting to screw with people... I think... 

If you haven't guessed by now these posts are really my back story....eventually I will be caught up.   But I think its important for anyone looking for answers.

So fast forward a year between being told to "just wait and see"...because honestly the year was really boring and there's not much to tell.  

Early Feb 2011 I went to the doctor for something...honestly I don't remember what for.   I mentioned my issue with seeing duplicates everywhere...know what he did?   He sent me directly to the MRI imaging center....I did not pass go and I did not collect $100. :) 
I think there are some people who live to be a doctor.  There are others that live for the money.   So, thank you Dr. Williams if you ever happen to read this for being the kind that lives for helping others....thank you! 

I got off track..

.... I will never forget the day the Dr called...never never never.  He said well we found something on your MRI....now I don't want you to worry but....

I think telling someone don't worry BUT is a lot like telling someone dont be offended BUT...just before they piss you off.  

I listened to the first of many many conversations that go like this.....so and so consulted with so and so...and they consulted with them....and so on... 
"the radiologist consulted with a neurosurgeon and neuro radiologist and they have confirmed Chiari....." 

WHAT!?   What is that?   How do you spell it?? Because I had a pen in hand ready to take down the name of this condition that I was about to google... He had to go look it up in a medical dictionary because he didn't know how to spell it either.   Of course he started looking through the K's to find it...  
So I google.....keari cause that is what it sounds like....ta da!  Apparently everyone else spells it wrong too because I was faced with About 2,010,000 results in (0.32 seconds)...What in the world was this...and O>>>M>>>G!...what came back was nothing less than scary as hell.   Anything that  mentions brain tissue and protruding in the same sentance is enough to scare anyone...whoever you are.  

So what is it?   Per the Mayo Clinic Chiari is defined as:  

Chiari malformation (kee-AHR-ee mal-for-MAY-shun) is a condition in which brain tissue protrudes into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward. Chiari malformation is uncommon, but improved imaging tests have led to more frequent diagnoses. 

The adult form, called Chiari malformation type I, develops as the skull and brain are growing. As a result, signs and symptoms may not occur until late childhood or adulthood. The most common pediatric form, called Chiari malformation type II, is present at birth (congenital). 

 So...where to go from here?  That appears to still be a question but I have been to an awful lot of here's and there's and still don't know where I'm going. 

My next stop...Neurosurgeon in Wilmington and Basilar Invagination... I'll get to that next :)