Sunday, July 29, 2012

Not really Chiari related but....

I guess this could somehow relate to Chiari but its a stretch :)

The relationship to Chiari would probably be life goes on and so do I.   Some days suck....others I feel perfectly normal.   Everyday I wonder what's coming..but life does go on.  

I loved this quote and am seriously thinking of getting the last part tattooed on me just in case I forget.


Ob-la-di, ob-la-da life goes on.... 
 (a Beatles reference for those scratching their heads)

Speaking of living....
We went to  Disney in May and had a blast.   I did not have one headache the whole time!  I was scared that I would have a bad day or many bad days but nope..no bad days..none, zilch, nada!

....it was awesome and I felt normal.



Making memories!
...great ones that we will remember forever. 


Disney was great and I have never felt so much like a kid than I did sitting at the base of Cinderella's castle during the fireworks....not even when I was a kid.  Absolutely amazing! 

There are moments that you thank God for.... being with my family during that fireworks show was one of them....